T1D Exchange

Activity
- 17 hours, 31 minutes ago
  
  Lawrence S. likes your comment at
  Have you ever tried CBD or marijuana while living with T1D? Share more about your experience and tips.
  NEVER HAVE AND NEVER WILL. PERIOD.
- 17 hours, 33 minutes ago
  
  Lawrence S. likes your comment at
  If you’re taking a GLP-1 medication, what side effects have you experienced? Select all that apply.
  I have been taking very low dose tirzepetide for about 6 months. Initially, I had some nausea which resolved after about a week. It is an amazing drug for us T1d's. My insulin dose is about 30% less with an increase in TIR and it is just easier to manage. I do not need to lose weight, but my doc who prescribes it a lot said I would not lose much and that is so. I lost about 7 lbs initially, but regained about 4 once the side effects wore off. Food noise is down which I didn't even realize was a particular issue. Paying out of pocket is onerous, but with low dose and a vial, it is not too bad.
- 1 day, 12 hours ago
  
  Ahh Life likes your comment at
  Have you ever tried CBD or marijuana while living with T1D? Share more about your experience and tips.
  I use a CBD/THC balm for joint and muscle pain.
- 1 day, 12 hours ago
  
  atr likes your comment at
  Have you ever tried CBD or marijuana while living with T1D? Share more about your experience and tips.
  I use a CBD/THC balm for joint and muscle pain.
- 1 day, 15 hours ago
  
  lis be likes your comment at
  What is the best advice you would have for someone who is newly diagnosed with type 1?
  Take a deep breath. It is a marathon not a sprint. Get a good healthcare team including an endocrinologist, diabetes care and education specialist, and mental health professionals. Do your own research but use well respected sources.
- 1 day, 15 hours ago
  
  lis be likes your comment at
  What is the best advice you would have for someone who is newly diagnosed with type 1?
  The curve-balls that life throws at you may seem like the cosmic unfairness of a brain-cancer diagnosis. But T1D is not like that. It's a condition, not a disease so much. But as such the condition will require attention, awareness, tight-rope walking, and the help of others if you fall off the high wire. And, man oh man, is it ever an exciting high-wire act. --〜⁠(⁠꒪⁠꒳⁠꒪⁠)⁠〜--
- 1 day, 15 hours ago
  
  lis be likes your comment at
  What is the best advice you would have for someone who is newly diagnosed with type 1?
  Educate yourself on this condition from many perspectives. From the professional level, the patients, and many different books of those living with it. Try and keep up to date with changing hypotheses of treatment. Get to know your body and digestion so you can choose the best insulin rates. Keep a daily diet along with activity and stresses to correlate to your blood glucose.
- 1 day, 18 hours ago
  
  Lawrence S. likes your comment at
  What is the best advice you would have for someone who is newly diagnosed with type 1?
  Keep glucose under control in order to avoid long-term complications. As soon as practical, obtain CGM and insulin pump.
- 1 day, 18 hours ago
  
  Lawrence S. likes your comment at
  What is the best advice you would have for someone who is newly diagnosed with type 1?
  Do your best to control your blood sugar but don't aim for perfection. That will never happen.
- 1 day, 18 hours ago
  
  Lawrence S. likes your comment at
  What is the best advice you would have for someone who is newly diagnosed with type 1?
  Educate yourself!!!
- 2 days, 15 hours ago
  
  Carrolyn likes your comment at
  What is the best advice you would have for someone who is newly diagnosed with type 1?
  Keep your glucose "between the lines" (time in range), learn all you can about type 1, ignore negative predictions of early death and live your best life!! I'm 74, 45 years with Type 1, and quite satisfied with my life!
- 2 days, 15 hours ago
  
  Carrolyn likes your comment at
  What is the best advice you would have for someone who is newly diagnosed with type 1?
  Educate yourself on this condition from many perspectives. From the professional level, the patients, and many different books of those living with it. Try and keep up to date with changing hypotheses of treatment. Get to know your body and digestion so you can choose the best insulin rates. Keep a daily diet along with activity and stresses to correlate to your blood glucose.
- 2 days, 15 hours ago
  
  Carrolyn likes your comment at
  What is the best advice you would have for someone who is newly diagnosed with type 1?
  The curve-balls that life throws at you may seem like the cosmic unfairness of a brain-cancer diagnosis. But T1D is not like that. It's a condition, not a disease so much. But as such the condition will require attention, awareness, tight-rope walking, and the help of others if you fall off the high wire. And, man oh man, is it ever an exciting high-wire act. --〜⁠(⁠꒪⁠꒳⁠꒪⁠)⁠〜--
- 2 days, 15 hours ago
  
  Carrolyn likes your comment at
  What is the best advice you would have for someone who is newly diagnosed with type 1?
  Be sure to get diabetes education and join a support group for type 1s
- 2 days, 15 hours ago
  
  Carrolyn likes your comment at
  What is the best advice you would have for someone who is newly diagnosed with type 1?
  Learn your body’s reaction to insulin, food, exercise and illness. All are equal in controlling your diabetes
- 2 days, 15 hours ago
  
  Carrolyn likes your comment at
  What is the best advice you would have for someone who is newly diagnosed with type 1?
  That this is a marathon not a sprint so be patient with yourself. You can not be perfect so give yourself grace when your blood sugar does not go as planned. Blood sugar numbers are just a data point to learn from not to beat yourself up over.
- 2 days, 15 hours ago
  
  Carrolyn likes your comment at
  What is the best advice you would have for someone who is newly diagnosed with type 1?
  Read all the books. Learn how insulin works (basal vs bolus).
- 2 days, 15 hours ago
  
  Carrolyn likes your comment at
  What is the best advice you would have for someone who is newly diagnosed with type 1?
  It’s a marathon - not a sprint. Relax
- 2 days, 15 hours ago
  
  Carrolyn likes your comment at
  What is the best advice you would have for someone who is newly diagnosed with type 1?
  Educate yourself!!!
- 2 days, 15 hours ago
  
  Carrolyn likes your comment at
  What is the best advice you would have for someone who is newly diagnosed with type 1?
  Be willing to: Learn & do the math Track everything & adjust accordingly Be wrong & change Be prepared that 2 or 10 or 20 years from now it'll all change
- 2 days, 15 hours ago
  
  Carrolyn likes your comment at
  What is the best advice you would have for someone who is newly diagnosed with type 1?
  I you to coach adolescents who were newly diagnosed, my exhortation was to treat their T1 D like a pet rattle snake, you need to take care of it, but for no good reason it may might you.
- 2 days, 15 hours ago
  
  Carrolyn likes your comment at
  What is the best advice you would have for someone who is newly diagnosed with type 1?
  Do your best to control your blood sugar but don't aim for perfection. That will never happen.
- 2 days, 15 hours ago
  
  Carrolyn likes your comment at
  What is the best advice you would have for someone who is newly diagnosed with type 1?
  Keep glucose under control in order to avoid long-term complications. As soon as practical, obtain CGM and insulin pump.
- 2 days, 15 hours ago
  
  Carrolyn likes your comment at
  What is the best advice you would have for someone who is newly diagnosed with type 1?
  You are not alone. You can do this. Seek out support.
- 2 days, 15 hours ago
  
  Carrolyn likes your comment at
  What is the best advice you would have for someone who is newly diagnosed with type 1?
  Learn as much as you can as quickly as you can, ask questions, and become the the captain of your team.
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A nonprofit dedicated to facilitating research and driving improvements in care and outcomes for people with type 1 diabetes.

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Ask the Expert: Diana Isaacs on Benefits, Risks, and Real-World Use of GLP-1s in T1D

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A nonprofit dedicated to facilitating research and driving improvements in care and outcomes for people with type 1 diabetes.

Living with T1D

We value your voice and experience with type 1 diabetes! Participate in research, join our community, and more...

Research & Partnerships

Conduct custom research, implement quality improvement initiatives, accelerate study recruitment, and advance health equity.

Ask the Expert: Diana Isaacs on Benefits, Risks, and Real-World Use of GLP-1s in T1D

Meet the Expert: Advancing Equity, Improving Outcomes, and Reducing the Burden of T1D

Spotlight on T1DX-QI: Clinical Leadership Committee

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A nonprofit dedicated to facilitating research and driving improvements in care and outcomes for people with type 1 diabetes.

Ask the Expert: Diana Isaacs on Benefits, Risks, and Real-World Use of GLP-1s in T1D

Meet the Expert: Advancing Equity, Improving Outcomes, and Reducing the Burden of T1D

Spotlight on T1DX-QI: Clinical Leadership Committee

Privacy Policy

Terms of Use

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We're preparing your personalized page.